Rowyn (rowyn) wrote,
Rowyn
rowyn

Lut Health Update: Stable

Lut's siblings came in last weekend, all four of them. I suspect I appreciated this more than Lut did. Bone marrow cancer causes a lot of fatigue: it's not just "he's in pain so he doesn't sleep well so he's always tired", as I thought before I brought him to the hospital. He just doesn't have a lot of energy. Maybe five or six spoons total for the day. Interacting with someone for a few minutes takes a spoon. It's hard.

On Saturday, I asked them to look at skilled nursing facilities for me. They ran all over the city, looking at the ones on the printout the hospital had provided. They were kind of horrified by most of them. They got to the last one on the list too late for a tour, and they told me I should look at it because it looked nice based on its website.

I went to that one and it looked good in person too: clean, well-lit, cheerful, good facilities. I went to the one his siblings liked the best of the ones they saw, and thought it was pretty good too. It was a hard choice for me, because the facility the siblings hadn't toured was a newer, nicer building with better grounds, but the rooms were smaller and most of them were "semi-private": they'd share a bathroom and a little foyer-hall with an adjacent room, and only a curtain separated them from the little foyer. It wasn't as a bad a shared room: there was a real wall between the two rooms. But a curtain is not nearly as good as a door when it comes to blocking sound. The more run-down facility had larger rooms and they were all private.

I tried to consult Lut on it on Monday, but he was too exhausted to give an opinion and the hospital wanted one in the next few hours. So I picked the nicer facility. I can hope he'll luck into a private room? I don't know how this will work with insurance. They are crazy expensive without.

At the hospital, they moved him from the ICU back to the regular ward last night. He doesn't seem to me like he's ready to be discharged to anywhere, but he's off the IV and they've detached all of the other wires they've had him hooked up to. They didn't even have him on a heart monitor when I saw him this morning. The case manager in the ICU thought he might be discharged this week. I don't know how long he'll be at the skilled nursing facility, except that it is short-term care, not long-term. The idea is that he gets rehab there, and then he can come home.

He doesn't seem to be in as much pain now, but he is exhausted every time I see him. Even when we get him sitting upright in a chair, he dozes off in a matter of minutes. If the chemotherapy works, he'll regain some energy, but I don't think rehab on its own is going to get him any more spoons.

I don't know what to say. People keep asking me how he's doing and it is exhausting to try to answer. Badly, but stable? He's better than last week but not better than when I took him to the ER. The oncologist is optimistic about the chemotherapy. He gets his second treatment today.

Prayers and well-wishes still appreciated. Thank you all for the car advice, too. *hugs*

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Tags: cancer, life
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